Hope for Henry This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
Fanconi Anemia Research Fund To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
Fanconi Canada Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
Fanconi Anaemia A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
B Positive, Inc. A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.
Alex and Matt Pearl Personal stories of two children fighting Fanconi Anemia.
Family Village: Fanconi Anemia Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
Adam Day Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a donation to the Fanconi Anemia Research Fund.
Kaps for Kendall In memory of Kendall Atkinson who died of Fanconi Anemia. Make or sponsor a hat that will be donated to children and adults in cancer and hematology treatment centers.
Fanconi Anemia Discusses the genetics of this condition and treatment options.
Blackfan Yahoo list group for Diamond Black Fan Anemia sufferers.
Fanconi Yahoo list group for sufferers of this condition.
