Hearts Of Hope Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia.
CHD Support Graphics A collection of banners, buttons, dividers and even e-cards to spread awareness about birth defects of the heart.
Resources from California State University Very extensive list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.
HLHS Information Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.
Palliative Operations The early staged operations for patients with this congenital heart defect, Tetralogy of Fallot, that lead up to the final correction surgery.
AMA: Statement for Health Care Professionals Guidelines for evaluation and management of common congenital cardiac problems in infants, children, and adolescents. From the committee on congenital cardiac defects of the council on cardiovascular disease in the young.
American Heart Association The AHA website is a simple introduction to the concept of congenital heart disease, with layperson explanations of the various conditions, tests for diagnosis and treatment options.
CongenitalHeartDefects.com Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals.
Fontan Operation Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle.
Heart Disease Online A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.
Grown Up Congenital Heart Patients Association (GUCH) Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.
Our Little Braveheart Jake was born with Tetralogy of Fallot. This is his story along with some pictures.
Prenatal Diagnosis of Heart Problems UK site on the diagnosis of defects in the unborn child, prior to birth. Details timing of scans, high risk groups, diagrams of cardiac conditions, and includes support groups.
