The Child With a Long-Term Illness AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
Living with Childhood Illness and Disability Resources page by the Center for Children with Special Needs includes handouts on safety, Disability Act, school preparation, the Internet.
Bandaides and Blackboards Supports kids, teenagers and adults who are dealing with having a medical problem. Advice about teasing, what to expect in a hospital, poetry, and shared stories.
Youth in Transition Article on transitions in youth with chronic health disorders advises their caregivers in assisting to gradual independence and self-management.
