MyCysticFibrosis.com Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
Cystic Fibrosis Resource Center Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
Cystic Fibrosis Health FactSheet Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
The Breathing Room Guidance about the art of living with cystic fibrosis.
Jewish Genetic Diseases - Cystic Fibrosis Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
CF Prescriber Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
The Spirit of Lo - Inspirational Book Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
Cystic Fibrosis Medicine Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
Home Page-Harminder Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.
CysticFibrosis.com Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
Medline Plus - Cystic Fibrosis A comprehensive source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.
Pulmozyme.com Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc.
Cystic Fibrosis Western Australia Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
