Newborn Screening.Com Regularly updated information and news pertaining to testing and screening. Explanation as to what it is, condition profiles, lab profiles and a discussion forum.
National Birth Defects Prevention Network Information about the organization, news, publications and upcoming meetings. Links to state monitoring programs, national as well as international. Instructions for joining the email list.
March of Dimes Resources for reducing infant morality and birth defects. Offers a health library, research, programs and a donation form.
Anencephaly Awareness Possible causes and information for future prevention of this disorder.
California Fetal Alcohol Spectrum Organization, CalFAS.org Working together to eliminate the disability FASD, Fetal Alcohol Spectrum Disorder by offering information, support and advocates. FASD includes FAS, ARND, ARBD and Static Encephalopathy caused by prenatal alcohol exposure.
The Pregnancy Risk Network Offers free telephone information about possible effects that medications, alcohol, illness, on children.
Research Explores Environmental Causes of Birth Defects Article from the Medical College of Wisconsin explains how in most cases, the precise cause of birth defects is unknown. Describes research being conducted at the College.
Save Babies Through Screening Foundation, Inc. A non-profit voluntary organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders detectable through newborn screening.
Birth Defect Research for Children Birth Defect Research for Children (BDRC)provides birth defect information, parent networking, resource referral and news updates on birth defect prevention. BDRC sponsors the National Birth Defect Registry, a project that collects data for birth defect research.
